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What happens when you prepare for everything? Except the thing that actually happens. On April 17, 2016, my son Will was diagnosed with severe hemophilia A when he was one day old. A genetic bleeding disorder where his body is missing a clotting protein most of us never even think about. Which means something as simple as a fall… can become life-threatening. For years, we kept this private. We didn’t want it to define him. We didn’t want people to see him differently. But the truth is— it’s part
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We continue to share Ryan White's story. He was one of the first children with hemophilia to be diagnosed with AIDS after one of his blood treatments was tainted with HIV. We celebrate the extraordinary life of a boy who just wanted to be a regular kid. #RyanWhite #HIV #AIDS #AIDSawareness #ryanwhitestory
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